Brem, A. S., Brem, F. S., McGrath, M., & Spirito, A. (1988). Psychosocial characteristics and coping skills in children maintained on chronic dialysis. Pediatric Nephrology, 2(4), 460-465. Fielding, D., & Brownbridge, G. (1999). Factors related to psychosocial adjustment in children with end-stage renal failure. Pediatric Nephrology, 13(9), 766-770.
Fredericks, E. M., Zelikovsky, N., Aujoulat, I., Hames, A., & Wray, J. (2014). Post‐transplant adjustment–The later years. Pediatric transplantation, 18(7), 675-688.
Freischlag, K. W., Chen, V., Nagaraj, S. K., Chua, A. N., Chen, D., Wigfall, D. R., ... & Chambers, E. T. (2019). Psychosocial Assessment of Candidates for Transplantation (PACT) Score Identifies High Risk Patients in Pediatric Renal Transplantation. Frontiers in Pediatrics, 7, 102.
Goldstein, S. L., Graham, N., Burwinkle, T., Warady, B., Farrah, R., & Varni, J. W. (2006). Health-related quality of life in pediatric patients with ESRD. Pediatric nephrology, 21(6), 846-850.
Lefkowitz, D. S., Fitzgerald, C. J., Zelikovsky, N., Barlow, K., & Wray, J. (2014). Best practices in the pediatric pretransplant psychosocial evaluation. Pediatric transplantation, 18(4), 327-335.
Moreira, J. M., Soares, C. M. B. M., Teixeira, A. L., e Silva, A. C. S., & Kummer, A. M. (2015). Anxiety, depression, resilience and quality of life in children and adolescents with pre-dialysis chronic kidney disease. Pediatric nephrology, 30(12), 2153-2162.
Taylor, J. M., Oladitan, L., Degnan, A., Henderson, S., Dai, H., & Warady, B. A. (2016). Psychosocial factors that create barriers to managing serum phosphorus levels in pediatric dialysis patients: a retrospective analysis. Journal of Renal Nutrition, 26(4), 270-275. Tjaden, L. A., Grootenhuis, M. A., Noordzij, M., & Groothoff, J. W. (2016). Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice. Pediatric Nephrology, 31(10), 1579-1591.
Tsai, T. C., Liu, S. I., Tsai, J. D., & Chou, L. H. (2006). Psychosocial effects on caregivers for children on chronic peritoneal dialysis. Kidney international, 70(11), 1983-1987.
Wightman, A., Zimmerman, C. T., Neul, S., Lepere, K., Cedars, K., & Opel, D. (2019). Caregiver experience in pediatric dialysis. Pediatrics, 143(2), e20182102.
Relevant Meta-analyses & Systematic Reviews
Aldridge, M. D. (2008). How do families adjust to having a child with chronic kidney failure? A systematic review. Nephrology Nursing Journal, 35(2), 157.
Clementi, M. A., & Zimmerman, C. T. (2019). Psychosocial considerations and recommendations for care of pediatric patients on dialysis. Pediatric Nephrology, 1-9.
Stabouli, S., Papadimitriou, E., Printza, N., Dotis, J., & Papachristou, F. (2016). Sleep disorders in pediatric chronic kidney disease patients. Pediatric Nephrology, 31(8), 1221-1229.
Steinberg, E.A., Moss, M., Buchanan, C., & Goebel, J. (2018). Adherence in pediatric kidney transplant recipients: solutions for the system. Pediatric Nephrology, 33(3), 361-372. Thys, K., Schwering, K. L., Siebelink, M., Dobbels, F., Borry, P., Schotsmans, P., ... & ELPAT Pediatric Organ Donation and Transplantation Working Group. (2015). Psychosocial impact of pediatric living‐donor kidney and liver transplantation on recipients, donors, and the family: a systematic review. Transplant International, 28(3), 270-280. Wightman, A. (2019). Caregiver burden in pediatric dialysis. Pediatric Nephrology, 1-9.
Interested in joining the Nephrology SIG?
We would love to have you join our community!
SIG membership is open to all Division 54 members in good standing.
If you would like to join, please contact the SIG chairs: Elizabeth Steinberg Christofferson, PhD: [email protected] Kaushal Amatya, PhD: [email protected]